This is Narcolepsy.....

Been a while since i added anything to my little blog so i think its about time i started again....

For my sister………

This is Narcolepsy

You’ll probably never read this

But I’ll write it anyway

I need you to understand

The struggle I face each day.

Lets start in the morning

With the medication I must take

To simple help me function

I rattle and I shake

And then of course there’s getting dressed

Some day’s this is a chore

To physically to put on my clothes

Can take an hour or more

My body hurts

My joints they ache

I need a nap

More pills to take

Then after lunch, if I remember

To eat of course, another sleep

This is my life –pills and naps

It makes me wants to weep

And yet when night descends

And the rest of the world it snore

With drooping eyes once again

I watch the clock and stare at shadows on the wall

I am so tired

I do not sleep

And yet I still must function

Like a zombie on two feet

My condition is invisible

THIS is narcolepsy

I am still here- shadow of myself

I’m not just being lazy.

And then there is the cataplexy

The “hilarious” falling down bit

It really isn’t funny

When to laugh or cry can make you drop

Like a stone to the floor

Make your face sag, your head flop

I know I am forgetful

It doesn’t mean that I don’t care

I’m not being disrespectful

Because I cant always be there

Fear often prevents me

Embarrassment- what if I fall down?

THIS is narcolepsy

Now do you understand?

I know you don’t believe me

You just don’t think it’s real

I no longer have the energy

Because you cant seem to deal

With an illness that YOU can not see

I know I look so “normal”

That’s the problem with narcolepsy

All I want is for you to believe me.

It isn’t fake, there is no cure

It isn’t very funny

Its unpredictable, my memory is poor

It’s downright devastating

THIS IS NARCOLEPSY.

November 2014